Tuesday, March 8, 2011

Getting Better

After getting a few weeks of experience under our belts and figuring out better solutions with the Doctors for Mr. Boy's  special care, we are feeling much better about life. All the stresses that come with new parenting and Mr. Boy's medical challenges had us reeling, but after this past week we feel renewed. Last week, two of our nurses from the NICU told us they were coming over to babysit so we had to go out to dinner. Instead of trying our usual polite decline, we jumped at the opportunity and it was wonderful. It was the first night since Mr. Boy came home that we had peace and weren't constantly in fear of the next disaster. That night was a turning point as we were able to rejuvenate and gain perspective. We realized Mr. Boy's cry volume ebbs and flows to the degree of our peace. When we were stressed during diaper changes, he would scream louder and after that night we were able to have a sense of peace and calm, which made him clam and able to enjoy his new life with us much more. My mother has also been here for the week and that has been nice since we can run all kinds of errands and laugh a little. My mom has also helped get Mr. Boy's room put together:


  1. What a great job of decorating!! So bright, cheery and coordinated--a room that any child would love! You must let your mom know that her help paid off.

    So glad you had a night out, with child care you felt comfortable with. Just having a nice break can be refreshing and encouraging.

    You continue to be in my prayers.

    Mike B.

  2. Sending love and prayers your way:) It is such a blessing that Asher is home...yet I cannot imagine the difficulties of adjusting. Also, God bless those sweet nurses!!

  3. So glad to hear you were able to get some time out together. It is so needed to re-charge your batteries; if we don't take care of ourselves, we can't take care of anyone else.You are so lucky to have such nice, caring nurses. Your mom did a wonderful job with Asher's room; she has such talent!

    Better days are ahead!


  4. Hi! My name is Meagan Cline. I was looking for information on OEIS Conplex and came across your blog. My 7 month old son has the same condition. We also have a blog setup for him. It's please feel free to look at it and contact me if you have any questions. I know it can be helpful to talk to someone who has already been through what your going through. I will be praying for your little one. He is precious!!! God bless!!!