Friday, July 19, 2013

What "eating" with a G-tube looks like

I am a very curious person. I am not curious in the same way Curious George is curious - I know this because I have been a frequent student of his cartoons recently, thanks to Mr Boy.  Curious George goes after all possible ways to satisfy his curiosity, whereas I often choose to keep my questions to myself. Well, if I were you, I'd be wondering what it looks like to feed Mr Boy through his feeding tube. I'd also choose not to ask me such a thing for fear of offending me (which is silly, because you would not offend me, but lets be honest, sometimes we are silly). So, in order to satisfy any of your lingering curiosities, and since I figure this is something he wouldn't mind you seeing, I'll show you.  Whether you care of not, here it is. :) 

Mr Boy licks all the salt off his crackers before placing them in his discard pile, during his "snack"
The boy can lick through a sleeve of crackers in minutes.

Licking the flavor off cheetos, crackers, and cookies during "lunch"

I lay him down to push the food I blended up, into his G-tube.

Using a syringe to push the blended meal directly into Mr Boy's stomach. 
I give him one of these 20 times a day on average, to give both water and food.
He is typically very patient with me as it only takes a few seconds. 

Sometimes if I make certain meltable foods into small enough peices (such as a mini 3Musketeer bar), Mr Boy will actually swallow them, but there's about a 75% chance it's coming back out of his mouth. Mr Boy is chewing some things now, which is a great improvement the past few months since he used to just hold things in his mouth without actually moving his teeth. Now he chews things up before gently taking them out and putting them back on the table.

Mr Boy's Blended Diet Recipe:
I pick one item from each bold category, depending on what I have on hand

 -Veggies-1 jar baby veggie, or 1/2 cup of veggie blend, or 1/4-1/2 cup sautéed zucchini, or 1 cup 
         broccoli, or 1/4-1/2 cup peas, or handful fresh carrots, or 1/4 cup cooked sweet potato, or 1/4 cup corn
-Fruit -1 cup berries or fruit mix, or 1 apple, or 1 pear, etc
-Meat/protein- 1 jar of baby meat, or 1/2 cup tofu, or 1/4 cup canned tuna, or 1/4 cup canned salmon, or 1/4      
         cup canned chicken, or 1/4 cup cooked chicken/meat
-Milk -9oz of 2% milk 
-Additional Dairy- 3/4 cup flavored yogurt, or 1/4 cup 2% cottage cheese, or 1/4 cup whole milk ricotta cheese
-Oils/Calories -1 TBSP canola oil, or olive oil, or flax oil, or coconut oil
-Additional Oil/Calories -1/4 avocado
-Additional Protein -1 heaping TBSP peanut butter, or 1/4 cup peanuts, or 1/4 cup almonds, or 1/4 cup walnuts, or 1/8 cup sunflower seeds
-Grain -1/4 cup baby rice cereal, or 1/4 cup brown rice, or 1/4 cup cooked barley, or 1/2 
         cup oat meal, or 1/2 packet cream of wheat, or 3 TBSP wheat germ 
-Juice -3 oz - prune juice 
-Extra calories -1 packet carnation instant breakfast essentials. 
-Children's Vitamin D supplement - (1ml of D-Visol)
-Spices- to help with digestion- ginger, cloves, allspice, cinnamon, nutmeg
-Optional add-ins when they are on hand: 
-1 hard boiled egg 
-leafy vegetables -spinach, kale, salad mix


  1. My son eats the salt off of pretzels and also makes a pile of them! Must be a SBS thing. I also feed Tyler via g-tube, but I use connection tubing. Just wondering if you've been provided tubing or if you have chosen not to use it.... Oh! Tyler and Asher's bellies look very similar, btw. Same g-tube, same scar, and same ostomy placement. :)

  2. Hey Laura! I have actually just been debating on whether to use the connection tubing. I have found that the back-flow preventer valve thingy-ma-jig inside the g-tube is not made to handle the kind of use I give it with the syringe. It breaks within a month. But I realized today I'd rather just deal with a little back-flow and hold a washcloth next to the hole when I slide the syringe out quickly to catch anything squirting back out at me, than use the tubing because then there is one more thing I have to clean. Plus, I would leave the tubing hanging onto his body for about an hour and a half during his bolus, and it really bothers him (even with that blue and white Flexitracks sticker, you can see in the photo, that holds the tubing so it won't pull the g-tube out). It vents just the same, as I pull the plunger from the syringe out, and then put it back in his tube and let the air vent out. For now its more convenient to use the syringe without the extensions... I may change my mind later! :)

  3. Thank You for sharing Kassy! I would never have known what the process entailed. God bless you always!!